Hi Andrew!
Apologies for the delay in response.
Unfortunately the nurse network discussion forum is not active at present. I can highly recommend the global rare ...
Unfortunately the nurse network discussion forum is not active at present. I can highly recommend the global rare ...
Hi Andrew!
Apologies for the delay in response.
Unfortunately the nurse network discussion forum is not active at present. I can highly recommend the global rare disease nurse network https://www.gnnrd.org/ though.
We are working with some of the team to share a Rare Disease 101 for nurses in the near future, so stay tuned.
Medics for Rare has a cohort of rare disease ambassadors who work together to share experience and learning with their wider professional circles. Next recruitment will be in summer 2026, so if you are interested, do keep an eye on our website and sign up for our mailing list. Please note, we are only able to consider those who are UK-based.
Best wishes,
Helen - Training Programme Manager
Unfortunately the nurse network discussion forum is not active at present. I can highly recommend the global rare disease nurse network https://www.gnnrd.org/ though.
We are working with some of the team to share a Rare Disease 101 for nurses in the near future, so stay tuned.
Medics for Rare has a cohort of rare disease ambassadors who work together to share experience and learning with their wider professional circles. Next recruitment will be in summer 2026, so if you are interested, do keep an eye on our website and sign up for our mailing list. Please note, we are only able to consider those who are UK-based.
Best wishes,
Helen - Training Programme Manager
